Living, Loving, and Thriving with a Medically Complicated Child. Friday, April 3, 2015. Sometimes, so much time passes since I last wrote, I feel like I should have something monumental to say.

About Breath of Hope, Inc. Expecting a CDH Baby? Bringing Home a CDH Baby. Resources and Products for CDH Children. WHAT IS A CONGENITAL DIAPHRAGMATIC HERNIA? If you believe in our Mission, please join us. Did you know that every time you .

Friday, August 7, 2015. Head to the Park for Gross Motor Fun. Kids gain social skills through figuring out how to interact with and share space with other kids. They develop resilience through mastering new skills. Hanging from bars strengthens hands and finge.

What can HIE Cause? Start Your Own Fundraiser. What can HIE Cause? Start Your Own Fundraiser. Welcome to a place of HOPE. Where you are not alone. And Hope is found in the Journey. Do you like this page? None of the individual contributors, or administrators of this website can take any responsibility for the results or consequences of any attempt to use or adopt any o.

Setting up a Tube Feed. Life is short and we have never too much time for gladdening the hearts of those who are travelling the dark journey with us. Oh be swift to love, make haste to be kind. 8211; Henri Frederic Amiel. This is not in anyway medical advice. Always consult your physician when it comes to your own treatment. Posted by Kirby in on February 13, 2010.

OHana Kids News was started by Josh and Heather Ackman, when they were looking for events and activities for their son, Zephaniah, to participate in. Zephaniah, is in a wheelchair, due to his terminal condition of Menkes Syndrome. OHana Kids News was founded in June 2010, when the Ackmans realized that many families were looking for the same information for their children. Thursday, August 15, 2013. Make Sure You Check out Our Website.

Home Medical Equipment for Patients with Edwards Syndrome. Home Care Ventilators for Chronic Lung Disease. Medical Equipment for Alveolar Hypoventilation. Medical Equipment for People with Micrognathia. Home Medical Equipment for Patients with Digeorge Syndrome. Juvenile Diabetes Home Medical Equipment. Pediatric Ventilators in Northern Kentucky and Greater Cincinnati.

How a blender revolutionized the life of a little girl and her family. How our beauty ended up with a blender. A few of our favorite things. Tuesday, July 30, 2013. We went camping as a family of four. Last summer it was out of the question because Beauty was on oxygen. But this year, we were determined to go. We brought our awesome blendtec blender. A pan for washing dishes, tubes, syringes, etc. The family of mannchester estate.